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Help!...Off Topic Post!

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T_Bone

03-13-2002 15:17:35




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Hi All, Please forgive my most unusal post but I need help and my Doctors can't help me. Please do not reply to this post on the board but reply to my e-mail as I don't want to clutter up the board with a post that doesn't belong here!!! But I'm getting desperate so please bear with me!

In June 2001 the wife and I came up with boils on our genital area, both of us at the same time, and they won't go away. The wife never had a boil before but I've had a few over the years in different places but usually not in the same place. The wife is some what responding to antibotics where I'm not responding too well.

What did we change in June 2001? We were drinking water from lakes and streams that we have doing for the past 40yrs without problems but not from these pictular water sources. Ate trout from lakes but again never from these lakes. And washed cloths in a laundry mat. The Doctors think this has nothing to do with our problems!

My boils started out on the side of my scrotum sack, poped like a normal boil does but came back larger each time after 3 weeks and repeated this process every 3weeks until I went in the hospital in November 2001 for 8days of IV antibotics. At that time my scrotum was as big as your fist on both sides and the infection dropped into my peneis. The IV was Primaxium 100mg 3x day. That knocked the infection down but didn't take it away.
The ran all kinds of cultures that showed common bacteria, inside my cell wall (thats the bad part), along with a Catscan and a Ultrasonic being negitive.

I've tried Augementin 850mg 2x/day and became resistant to the anitbotic.
Next the Doc tried Ceftin 500mg 2x/day and I had very little response.
I'm now on Levaquin 500mg 1x/day and it somewhat controls the infection but no shows progress to taking the infection away.

The Doctors that I've seen, Internal Medicine, 2)Urologists, and a Infectous Disease doc. None of them can tell what the infection is nor how we got it.

I seen a Urologist Surgeon yesterday and his fix is to start cutting meat until he does not run into any more infection. And he says that the infection may come back. This treament is not an opiton as I would just as soon die than to be left with a bag(s). I have other medical problems that makes this decision easy.

Please I don't need symaphy but do need suggestions of what alternitive to try. If you recomend a Doctor, Please give me there name and telephone number and I don't care where there it's at. Have a different home remedy to try, send it e-mail. All suggestions are welcome!

Again, Sorry for the long off topic post but farmers and other specialists have great ideas.

T_Bone

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ol chief john cooney

03-13-2002 17:52:32




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 Re: Help!...Off Topic Post! in reply to T_Bone, 03-13-2002 15:17:35  
What is your E Mail address



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T_Bone

03-13-2002 17:57:53




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 Re: Re: Help!...Off Topic Post! in reply to ol chief john cooney, 03-13-2002 17:52:32  
Just click on blue "T_Bone" and it will give you my e-mail addy automaticaly.


[email protected]

Thanks,
T_Bone



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T_Bone

03-14-2002 22:28:22




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 Re: Re: Re: Help!...Off Topic Post! in reply to T_Bone, 03-13-2002 17:57:53  
Thanks all for the suggestions. Wow I did receive alot of responses.

I think I found out what my problem is called,
Hidradenitis Suppurativa another disease with little hope of getting rid of it. Now I understand why I have been having such a hard time trying to get rid of the infection. I still have no idea of how I got this stuff other than it seams to come with other exisiting medical problems which I have.

Who correctly diagnosed the problem? You got it a fellow tractor board member that I now call "Doc". If this person would like to be known to all, I'll be more than happy to post who it is!
With-in two hours of my posting this person diagnosed the problem, told me how to start treatment and what treatment was available.

How do I know it's the correct diagnose? From doing research on the net and my current medical records along with pictures of the infection that is posted on the net.

Many thanks to all!

T_Bone

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old bones

03-15-2002 18:24:08




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 Re: Re: Re: Re: Help!...Off Topic Post! in reply to T_Bone, 03-14-2002 22:28:22  
good luck with your problem, T-Bone. i learn from and enjoy reading your posts & replies. bones



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