Lyme Disease - anyone coping with it ?

Billy NY

Well-known Member
Looks like this will be my next immediate challenge, will have to head into the shop asap,(doctor). A week ago, I see this large red patch, left shoulder, no bite mark though, did get nailed by a tick in May, but I figured its the annual spider bite. Nope, it slowly turned into the signature bulls eye, maybe a slight soreness in that shoulder joint prior to, seems the arthritis also kicked up a notch, left ankle is raw at times.

Wake up at sunrise today, that shoulder joint is beyond words to describe. Can hardly use that arm. Rest of me is fine though, and I believe this can put you flat on your back, headaches, fever and other flu like symptoms that hit you hard. The problem today is, I have a rental machine scheduled today, just a small one for a small one day job. It's going to be fun trying to run a backhoe with one arm LOL ! Sucker hurts.... anyone deal with Lyme and how did it turn out?

I know if you let it go, it can ruin ya, only know one person that's gone through it and he's fine. Hard to believe, I've never not noticed a tick on me before, one, (nymph) must have got past the gate somehow !!! Always something, well at least the weather is about as perfect as it gets today!
 
Was the tick's head buried under your skin? How long do you think it was there until you removed it? Did the head come out with the body? Good outcome depends on quick clean removal; otherwise the chances increase for infection. Good Luck!
 
Last one came out clean, back in May, I've been bit many times over the years unfortunately, but nothing came of it. This last one may have been on 24+ hours, was the next day when I found it, but could not be sure as to when it started drilling, as I was at a family gathering. There is a worse tick born illness out there now, Powassan, but its not nearly as common as Lyme.

Funny how the last one was in May, and I'm having symptoms now, unless one got by undetected. I will be making sure the medical professionals do the right thing, as this is not an easy diagnosis for some. I have been tested a few times before, this time I have the textbook symptoms, if one more joint hurts like this, I'll be offline for sure, had best get to this job now, be done with it and get to the doc, definitely no joke.
 
A guy I work with had it. He let it go for a while, thought he had the flu. He did fully recover, but said it was a few months before he felt completely normal again.
 
I also contacted Lyme disease several months after my last known bite and that tick was removed cleanly. I can’t stress enough researching Lyme disease and talking to experts. My local doctor misdiagnosed and miss treated my symptoms and that resulted in about a year of health issues. I reached a point where it was difficult to function and it even impacted my ability to think clearly. I finely transferred to the Mayo Clinic in Rochester, MN and got a good diagnosis. It took almost another year to restore the bacterial balance in my insertional tract that the first doctor messed up with incorrect treatment.
Sounds like you are doing the right thing by being well informed. I was told by the Mayo clinic that it is hard to diagnose and also hard to treat. Look for an experienced physician. There are several variations of Lyme disease and I had Human Anaplasmosis. Don’t remember where that ranks on severity, but wouldn’t wish it on anybody. Cost me about two years of issues and I am fine now.
Good luck.
 
(quoted from post at 06:23:46 08/28/15) A guy I work with had it. He let it go for a while, thought he had the flu. He did fully recover, but said it was a few months before he felt completely normal again.

[size=18:e111c01c4a]DON'T DELAY[/size:e111c01c4a]

There are plenty of website addressing Lyme disease so Google is your friend here. Google names like Klinghardt or Buhner or Horowitz.

Here are some books

Book #1
https://books.google.com.tr/books?id=ZFMRKZ2uoW4C&printsec=frontcover&hl=tr&source=gbs_ge_summary_r&cad=0#v=onepage&q&f=false

Book #2
Reversing Chronic Lyme Disease: The New Paradigm Beyond Conventional Medicine Kindle Edition
by Craig Bruner
Link: http://amzn.com/B00DJMIEOA

In this book he compares the Borrelia b. bacteria to Star Trek's Borgs; it assimilates everything you throw at it, then morphing into another resistant form. The author is not a doctor, but he has searched decades for the cure for his Lyme disease. The biggest revelation for him, and a cure for his Lyme, was when he realized how this "Borg-morphing-thing" was Borrelia's greatest weakness: by constantly rotating, and varying the weapons you use, you don't give time to the bacteria to assimilate and communicate with it's buddies, and ultimately they "short circuit" themselves. The author's experience is, that antibiotics didn't help him at all, they only made things worse. He used a multitude of natural remedies and other alternative methods (also ozonated water, by the way). However, since this book was written, the antibiotics might have improved - and the important thing seems to be to attack from all angles, using different antibiotics, and alternative medicine etc.


Book #3
http://www.amazon.com/Why-Cant-Get-Better-Solving/dp/1250019400
 
A cousin came down with it about 30 years ago. It took a year for them to properly diagnose it. His was flu like symptoms. They treated him for quite a while as a sinus infection. He had problems with fever,nausea,night sweats and fatigue. When they finally diagnosed it,they told him that with the massive doses of drugs they would have to give him would likely lead to an early demise. It took about two years for him to get back to somewhere near normal,but he still complained of a little bit of twitching in one hand if I remember right. He just turned 80 a couple of weeks ago,so it's curable apparently. I don't know if the treatment regimen has improved over the last 30 years or not. I guess you'll find out.

Bottom line though,if you think you have it,make sure they test for it right away. It sounds like it's not something they test for in the first round.
 
My wife was bitten by a tick in 1971 and went untreated for 37 long years...No doctor could diagnose it...She felt lousy all the time but the doctors all said it was all in her head.....Finally around Christmas 2007 she got real bad and could barely walk....She has terrible headaches with it..I and my son typed in all of her symptoms on google...They all pointed towards Lyme disease..

There are only two Lyme literate doctors in our entire state..We called one and he was booked up for a year and so was the other one..Two months later she was able to get in when someone cancelled...She was immediately diagnosed with Lyme and was put on high powered antibiotics...It helped her alot but she went back in to relapse in 2014...This time the antibiotics aren't working as good..She has just had Lyme for too long..

We know of 15-20 other people in our area with Lyme disease..I'm sure that there are others..Several went undiagnosed for years and ended up in wheel chairs..One died..We have referred 5-6 people to my wifes Lyme doctor 150 miles away and they are being treated by him..When we are at my wifes Lyme doctor lots of the patients are from out of state..Lyme must be taken serious...The quicker you get treatment the better.....Most local doctors don't know how to treat it even if they identify it....If after treatment things don't get better find a Lyme literate doctor..Good Luck..
 

Lyme is tough to diagnose.The test used will often indicate something other than lyme but also indicate lyme when that's not the problem.A real crap shoot.If it is lyme the treatment must be aggressive and may be lengthy.
 
My daughter noticed a funny rash on her leg one morning last year when she lived in DC. She took daily walks in the woods with her dogs and her dogs slept in her bed with her (a no-no with me and my wife). She is very susceptible to things due to other health issues so she went right in to the doctor as soon as she noticed it. Diagnosis: Lyme disease. A regimen of antibiotics quickly got it. Eastern Seaboard is real bad for it.

Here in Michigan, a guy I know became ill, ended up in the hospital and almost died. Finally diagnosed it as Lyme disease. After a couple of months in a nursing facility, went home and was so weak, he had to use a walker for quite a while. Took over a year before he felt that he was "cured".

Lyme Disease is bad stuff. I spend a lot of times in the woods, spray myself with a good DEET based repellant religiously. Our dogs get the monthly treatment. I've found a few ticks on them this year. After I'm out in the woods, I strip down, check myself and take a shower. I found one on me this year. Nothing to take lightly, them ticks.
 
Got it like eight years ago. Had a tick on me no more than eight hours possible. Got the bulls eye and was at the doctor within 12 hours. Several weeks of anti pills. DO NOT mess with it!
 

From what I see on the news I live in the world center of Lyme disease. I have had no problems but people are pretty careful around here. I was talking recently with a friend who is recovering. He is doing OK but has been on antibiotics for over a year. It takes a long time to get over it.
 
I have had both Lyme disease and rocky mountain spotted fever. Thanks to the Lord that I have fully recovered from both. Got the bullseye rash in the early 90's. Doc prescribed about 5 days of antibiotics. It helped, but aching joints and headaches came back shortly later. Another doc prescribed 14 days of antibiotics, and that put an end to it. Once infected, you have a limited time to eradicate with antibiotics or it becomes a chronic condition and then is difficult or impossible to eradicate. Best wishes and prayers for your recovery. Do not wait for any recurring symptoms to go away on their own, you need to be aggressive in seeking effective treatment.
 
At least you had the bull's-eye indicator which is enough for a knowledgeable doctor to treat.
The tests that are used are not very accurate.
Find a LLMD ( lyme literate medical doctor )
Start treatment ASAP, ensure treatment is long enough.
Heart issues, intestinal issues, Bells Palsy, numbness,tingling sensations, burning sensations,
hyper sensitive skin,foggy eyes, foggy brain the list goes on ( these symptoms rotate for me)
As I type this slight Bells Palsy and some facial tingling are only symptoms.
Our Med system in Canada sucks at this, the neurologist thought maybe I was depressed
when I mentioned Lyme she almost pushed me out of the office

Best wishes for successful treatment
Lyme Discussion Board
 
Neighbor was tested for Lyme 2-3 times and tests came back negative but the one doctor said I have a gut feeling this is Lyme and started antibiotics IIRC intravenously at first then oral and he recovered. He had it a while before treatment and raved about that doctor after that. This also was quite a few years ago, I think things are better now.
 

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