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Tractor Talk Discussion Forum

Re: OT - anyone ever have Lyme disease here ?

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11-14-2012 06:09:39

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I thought I had it and was treated 15 years ago. Never really got a lot better. There is NO absolute medical test that can prove you've got it or not. If suspected by symptoms and bloodwork - they treat you with anti-biotics. If you then improve - they say you had it - in retrospect.

Dairy farmer near me was diagnosed with it 15 years ago. He got so bad he wound up in a wheel-chair on intravenous antibiotics. After years of treatment they (medical experts) decided maybe the cause was something else. At one point, they started treating him with anti-depressants saying maybe he had fibro myalgia. He wound up shooting himself - and then his medical issues were easy to diagnose.

One thing that IS known for sure. If you have Lymes - and the treatment works - it stops it from getting worse. It does NOT always remove the bad symptoms you've already got. Of course, every person is different. That is the reason why early treatment is important. Last I checked there were three different types of blood tests for it and none are are absolute.

Note also that with Fibro Myalgia . . there is also no absolute test. No known cause either. Just nerves gone haywire.

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Billy NY

11-14-2012 06:37:00

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 Re: OT - anyone ever have Lyme disease here ? in reply to LJD, 11-14-2012 06:09:39  
Well, I'll have to wait 24 hrs more, can't get in until tomorrow 8am, sun shining, calm air, kind of makes you feel better too.

One of my best friends dad in 2010 checked out in the same fashion, waited til his wife was out, went down behind the barn, right behind his tractor a 2020jd, some suspicion about anti depressant meds by the oldest brother, middle one found him shortly after.

I might be jumping the gun on Lyme, but like you say the diagnosis, testing and follow up treatment does not seem to be an exact science.

The symptoms appear similar, and I sure as heck know not to play around with doctors with this, you need one that is Lyme literate. I've found that one has to be very careful with medical professionals, my father has had a rough time the last few years, only within the last year since switching doctors, to one that had a real interest in helping him, getting to the root of the problem, he just had a minor surgery that resolved something that was likely the cause, he was darned close to succumbing to complications caused by a a long standing infection in his sinus cavities, was triggering asthma, which played heck with his heart rhythm, BP etc. If he continued with the same regimen it would have no doubt got the best of him, I saw it with my farmer friend while he was hospitalized, doctor on the hospital floor disagreed with the large dosages and medication prescribed by the previous doctor, I was sitting right there, he's a good friend, doctor said everything in laymans terms, but in summary, this change and his follow up to continue healing saved his life, and though he downsized the ag work to just hay, mostly round bales, he can still work, what he was facing was the end of all of it and very possibly himself. A person really has to be proactive with these medical professionals, as it seems they do more of prescribing medications vs being a physician, and the 2 cases I mention above were cut and dry after changes were made, had both continued, they'd not be here, I guess its like the difference between a mechanic and parts replacer LOL !

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11-14-2012 07:35:03

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 Re: OT - anyone ever have Lyme disease here ? in reply to Billy NY, 11-14-2012 06:37:00  
Everybody is different. In my case - maybe 15-20 years ago - almost all-of-a-sudden I started feeling real tired and sometimes had ache and pains almost everywhere. So considering all the ticks we have around - I went down to the doctor and got a blood test. First one came back negative and the doctor refused to "grant" me a second test. I then paid out of pocket for a 2nd test and this time it indicated I DID have it. Still proof of nothing. I got antibiotics for 6 months and it made no difference. Then I went to the hospital pain-clinic and was diagnosed with Fibro Myaligia. They prescribed Amitriptyline. This drug is used in low doses as a sleep remedy and higher doses as an anti-depressant. I took it for a week and started feeling REAL weird mentally. So I had to quit before I became an axe-murderer. A few years later after doing my own research, I suspected I had Hepatitis C. Went to the local doctor and she told me my self-diagnosis was "nonsense" and refused to authorize a blood test. So again - paid on my own and came back positive. I've been tested every 6 months since and am always positive. I've never taken any treatment for it. The only known treatment is interferon "chemo" for 6 months to 1 year. Seems to have a 40% success rate. They geno-typed the strain that I have and gave me a 20% chance of improvement from it. I've passed so far. I'm over 60 as it is and I worry the "cure" might kill me. That's what happened to the founder of Walmart as I recall.

Anybody that has had surgery, dental work, etc. before 1993 can have caught Hep C.

By the way - my friend's wife was diagnosed with Lymes 20 years ago. That diagnosis changed from Lymes to Fibro Myalgia, then to MS, and now to Lupus.

Obviously medical "science" is not an exact science.

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Billy NY

11-14-2012 08:33:25

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 Re: OT - anyone ever have Lyme disease here ? in reply to LJD, 11-14-2012 07:35:03  
Modern medicine is wonderful, but like you say, it ain't nor will it ever be perfect.

That situation you describe sure has to embed itself in your mind, because you can't seem to get closure on it and you've got a youngster to raise, a wife to enjoy, + the places you have, you want to be there for him, and the other things who needs this crap LOL !!!

I agree, some of these meds are just crazy, I had a doctor prescribe paxil, was on a tough, stressful job in NYC, and was taking a beating with the hours and imbalance of off work hours, little moody, so ok doc, thanks for the help, whoa... wait a minute, few weeks into that, once it got into my system, felt like I had a ear to ear smile, as if I was on some illicit narcotic, hallucinogen or the like, not for me at all. Turned out a little Xanax when I felt I needed something to relax, that one for me was what worked great, it helped and was used on a very limited basis, last time I had it was before a surgery, to relax, higher dosage. No need for it now that is for sure. I don't care for any off the shelf or prescription drugs for the most part, all chemicals and its hard on the liver, only when really necessary. You can have drugs like Paxil, $100/ per prescription for something that you would think someone would find on a street corner somewhere LOL !

Hep C, that can be really bad and harsh on your liver, causing a lifetime of issues my father had a good friend, whom while was in college was helping push a stalled car out of the way and a drunk hit them, he lost a leg, drunk had diplomatic immunity, could do nothing to prosecute, he eventually had a liver transplant, 12 years later though it was most likely the cause of death.

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11-14-2012 10:08:48

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 Re: OT - anyone ever have Lyme disease here ? in reply to Billy NY, 11-14-2012 08:33:25  
Hep C can kill one person in a year, while another can have it for 80 years and die of something else. It causes scars on the liver and can wind up causing liver cancer - or requiring a transplant. Many "celebs" have it (or had it). Evel Kenivel, J.R from Dallas (Larry Hagman), Winona Judd (singer), Crosby from Crosby-Stills-Nash-Young, Gregg Alman (Alman Bros Band), etc. Before 1993, medical and dental instruments were not heated high enough to kill the virus so anybody who was around before then could have it. With many - you can have NO symptoms for 40 years and then they start. That sometimes 40 year delay makes "cause and effect" hard to detect. Hep C can give similar symptoms as Lymes or Fibro Myalgia.

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